Every November, National Epilepsy Awareness Month serves as a crucial reminder to raise awareness and foster understanding about epilepsy, a neurological disorder that affects millions of people worldwide. Epilepsy, though common, is often misunderstood, and misconceptions surrounding the condition can lead to stigma and social isolation for those who live with it. In the UK, an estimated 600,000 people have epilepsy, meaning that one in every 100 people experiences seizures at some point in their lives. 

This blog will explore the significance of National Epilepsy Awareness Month, the importance of raising awareness, and ways to support individuals with epilepsy while challenging misconceptions about the condition. 

What Is Epilepsy? 

Epilepsy is a neurological disorder characterised by recurrent, unprovoked seizures. These seizures occur when abnormal electrical activity in the brain disrupts normal communication between nerve cells. The severity, frequency, and type of seizures can vary greatly among individuals, with some experiencing brief lapses in consciousness, while others may have more intense convulsions. 

There are different types of epilepsy, including focal seizures (which originate in one part of the brain) and generalised seizures (which affect both sides of the brain). Epilepsy can develop at any age, though it is often diagnosed in childhood or among older adults. Despite advancements in treatment, around 30% of individuals with epilepsy do not achieve complete seizure control with medication, meaning they continue to face significant daily challenges. 

Why Is National Epilepsy Awareness Month Important? 

The primary goal of National Epilepsy Awareness Month is to shine a spotlight on epilepsy and the people who live with it. Epilepsy awareness helps to dispel myths, reduce stigma, and create an environment where individuals with the condition can feel understood and supported. By raising awareness, communities can work together to ensure that those with epilepsy are given the necessary tools and support to live full and independent lives. 

Many people, even today, are unaware of what epilepsy truly entails, or they hold misconceptions about the condition. Some mistakenly believe that epilepsy is contagious, or that it only affects certain people. These myths, along with the visible nature of some seizures, can lead to fear, misunderstanding, and isolation for those with the disorder. National Epilepsy Awareness Month seeks to challenge these misconceptions and offer accurate information to the general public. 

Key Themes of Epilepsy Awareness 

During National Epilepsy Awareness Month, organisations and advocates focus on several key themes that promote better understanding and support for people with epilepsy. 

Education and Understanding: 

Education is a critical tool in the fight against stigma. By providing accurate information about epilepsy, its causes, and its treatment, we can help dispel the many myths that surround the condition. For example, some people believe that epilepsy is a mental illness or that people with epilepsy cannot work or live independently. In reality, epilepsy is a physical neurological disorder, and many people with epilepsy can lead fulfilling lives with the right support. 

Schools, workplaces, and community organisations can play an essential role in promoting epilepsy education. For instance, teachers and staff should be trained on how to respond to a seizure and how to support students with epilepsy, ensuring they are not isolated or bullied. 

Seizure First Aid: 

One important aspect of National Epilepsy Awareness Month is the focus on educating people about seizure first aid. Knowing what to do during a seizure can help prevent injury and ensure that the person having the seizure is safe until it passes. 

Stay calm and time the seizure: Most seizures last between 1 to 3 minutes. If a seizure lasts longer than 5 minutes, seek medical help immediately. 

Move any dangerous objects away: Ensure the person is in a safe environment and remove objects that could cause harm. 

Don’t restrain the person: Trying to hold the person down can cause injury. Allow the seizure to run its course. 

Roll the person onto their side: This helps prevent choking, especially if they are vomiting or have excess saliva. 

Never put anything in their mouth: Despite popular belief, a person having a seizure cannot swallow their tongue, and placing objects in their mouth can cause injury. 

By teaching these first aid steps, we can reduce the risk of injury during seizures and increase confidence in supporting those with epilepsy. 

Encouraging Advocacy: 

Another key theme of National Epilepsy Awareness Month is empowering individuals with epilepsy and their families to advocate for better services, treatments, and policies. In the UK, organisations like Epilepsy Action and Young Epilepsy provide resources to help people with epilepsy make their voices heard. 

Advocacy also involves pushing for greater government funding for research into epilepsy treatments. While many people with epilepsy can manage their seizures with medication, others are resistant to current treatments. Continued research is essential to develop new therapies and improve the quality of life for everyone affected by the condition. 

How Can You Support Epilepsy Awareness Month? 

There are many ways that individuals, communities, and organisations can get involved during National Epilepsy Awareness Month. 

Wear Purple 

One of the simplest ways to show support is by wearing purple, the official colour for epilepsy awareness. Wearing purple during November can help start conversations about epilepsy and show solidarity with those living with the condition. You can also encourage your workplace or local schools to participate in “Purple Day” events, where people wear purple to raise awareness. 

Share Information 

Sharing accurate information about epilepsy on social media platforms is another powerful way to raise awareness. Whether it’s through posting informative graphics, sharing stories from people living with epilepsy, or educating your followers on seizure first aid, social media can be a valuable tool for spreading awareness to a wider audience. 

Participate in or Donate to Epilepsy Charities 

Epilepsy charities like Epilepsy Society, Epilepsy Action, and Young Epilepsy provide support services, research funding, and advocacy efforts that make a real difference in the lives of people with epilepsy. Donating to these organisations or participating in fundraising events can help ensure that they have the resources they need to continue their work. 

Volunteer Your Time 

If you’re looking for a more hands-on way to support epilepsy awareness, consider volunteering with a local epilepsy charity or organisation. Volunteers can assist with awareness campaigns, fundraising events, and providing support to those newly diagnosed with epilepsy. 

Moving Towards a More Inclusive Future 

As we move through National Epilepsy Awareness Month, it’s essential to remember that awareness and understanding shouldn’t be limited to just one month. People with epilepsy face challenges every day, and it’s up to all of us to ensure that they are met with kindness, support, and understanding. 

By educating ourselves and others, advocating for better services, and supporting epilepsy charities, we can contribute to a future where individuals with epilepsy feel empowered, understood, and included in society. Let’s make this National Epilepsy Awareness Month a catalyst for long-lasting change.